Jersey has made "considerable progress" over the last 2 weeks and "good progress" over the last week her surgeon said and we are thrilled!! He said today she was stable, stable!!! she's never been stable before, this is huge. So she's made huge progress, she's stable, AND her doctors are hopeful...a little weight is off our chests. Her nurse said she's one of the miracle babies that proves everybody wrong. I love it!
Having said that we have to take the good and the bad, unfortunately. She has a condition called chlyothorax. I don't really understand it so I won't try to explain it. But what I do know is it causes an excessive amount of drainage out of her left chest tube and she's been switched to a special formula for her feeds rather than breast milk. Her doctors are worried that because she's draining so much her already rotten nutrition is even more compromised. She's plateaued and won't get much better if she isn't fed and she can't be properly nourished until this chylothorax is taken care of. Also, she needs to be put on permanent dialysis for her unfunctioning kidneys so her poor little body will have to endure another surgery with 2 different things on the agenda. Her doctors want to take advantage of her stable condition in hopes of an easier recovery.
Her surgery is a relatively low risk surgery but I'm not sure I can handle a repeat recovery from these last 4 weeks. I'm terrified she'll come back to us looking, acting, responding horribly. It's taken her 4 weeks, 4 weeks to stabilize since her surgery.The doctors still have no answers as to why she did so terribly, what if it happens again? I anticipate taking a step or two back but I'm not prepared for any more than that. I'm amazed at what her little body has already survived and I think it unfair to ask her to do it all over again. What was she thinking when she raised her hand in Heaven and signed up for this? She's a fighter as she has already proven, if she can endure this life of surgeries, sickness, and unknowns surely there is a throne waiting for her.