Wednesday, December 17, 2008
P is for Progress, and More of It!
She's had several good days in a row so thankfully there's not much to report. The doctors are continuing to pull off fluid and by this weekend she should have her chest closed...hopefully!!! She's finally beginning to look like her tiny self again! Her lungs are looking and sounding better while her kidneys are taking their sweet time coming back. She is having further genetic testing done as her looks are raising a few questions. Not because I'm biased, but I think she looks normal. If there is a syndrome or any missing genetic information it may explain why she's had such difficulty responding and recovering from treatment. Cross your fingers she's "normal"!! We are SO blessed to have her. I have learned things from this experience I wouldn't learn otherwise. Life is precious and fragile and there's so much we take for granted. Jersey Girl has opened our eyes to the small and big things, the important and the unimportant.
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13 comments:
Oops...that was me.
I'm so glad she's making such good progress!! YEAH for her! SHe's such a fighter..that was a lot to be up against all at once..
I love when the fluid starts to come off and you start to see your baby again, not the little puff ball that dosn't resemble her..:) We sure are praying for you guys..
avery
Heidi,
I'm so happy to hear she is still progressing. You and Chris must be exhausted in dividing your time between the hospital the the blondies.
We continue to keep you in our family prayers. Love you all
You guys are amazing. What a journey to go through and what amazing lessons you are learning. Jersey is a fighter, she has already proven that, We hope and pray for great things to come in the next few days. Keep us udated (you always do)and we can't wait to see pictures again of this little princess. Love you guys
Thank you so much for updating us so regularly, it is a relief to know she is doing well. We will keep you in our prayers.
Take care,
Karen Cole
GV2
I remember when they tested my son for 'anomalies' because his ears were too big and his head was misshaped. Made me panic for weeks before we figured out he just had a funny shaped head and big ears. All part of the Heart defect testing process I guess. Good for her making progress, every little bit is a huge victory, I know.
YAY for more progress. ill get with you next month to make sure its still okay to come see you guys.. my due date is March 5th so i have a little over 2 months to go. im getting a little nervous the closer it gets but i know we will be in such great hands. im looking forward to meeting you & your precious baby. keep the updates coming!
-Jessie
Go Jersey Go! Thanks for keeping us updated! Know that you are in our hearts everyday.
xoxo, C
Oh I'm so glad to hear that she's still making progress!! I'm sure it's such a relief for you to see that she's still fighting. I'm so glad you keep your blog updated because each day I'm so anxious to see how she's doing. Yeah for Jersey girl!!
I am so happy to see that for the past few blog updates there has been so much progress. I check everyday and wait, crossing my fingers and having a little prayer in my heart that she is continuing to improve. What a sweet little Christmas angel she is.
Heidi,
We stopped by to meet you guys today after our appointment, but you were out. I'm SO glad things are looking up. Take care of yourselves and keep your spirits up!
Stacey Tams
SO happy to hear of progress!
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