Monday, December 15, 2008

Yeah for Progress!

Over the last few days Jersey has done nothing but progress!! It feels SO good to say that! Her main goal over the last week has been to loose fluid and finally she's responding to treatment. Her tiny 5 pound body has lost about a liter and a half of fluid and she still has about another half a liter to go! Once she has lost the remaining half liter the surgeon will be able to close her chest which will help her heal a little quicker. Having an opened wound is hard work on a little princess! As for her tootsies the surgeon suspects she'll recover but not without battle wounds. She'll blister and scar and loose some plumpness at the tip of her toes but we can handle that! Only time will tell though. She's been re-started on a medication called Lasiks to help jump start her kidneys that are very slowly coming back. HOORAY! Her heart has been pretty strong and consistent over the last week but has started a weird rhythm so the doctors are keeping their eyes on it. Over all she's doing pretty well, how relieving it is to finally be getting good news!

On the home front Tatum and Tucker have become quite the hand full. They are wired and naughty when usually they are darling and obedient. I know it's because they need our love and attention but it's quite hard to remember that in the middle of the third major meltdown. When Chris and I are exhausted physically and emotionally we want to come home and be with our "normal" blondies who aren't their normal darling selves. Instead of a fun evening together it usually ends with tears and fits. We constantly remind ourselves "this is only temporary" and while we understand that T&T don't. We'll recover, they'll recover but it's SO difficult while we're in the thick of it. We love them dearly and want to be/do everything for/with them. All in good time. How much we'll appreciate being a normal family some day!

21 comments:

Tara Bowman said...

We are so happy to hear the good news. And hope the good new continues. We think of your little one often and wish the best for you and Chris and your other two little ones.
Tara and Travis

PamJorg said...

YAY for Jersey!!

Kristine said...

It was so nice to hear good news!!! I'm so happy for you and miss Jersey! Keep up the trend!

Ashleigh and Zebb said...

oh Im so glad to hear good news!!! but it doesn't mean we'll stop praying...she'll always be in our prayers. and so hard for tatum and tuck but like you said, its only temorary they'll be normal again soon, and your family will be home soon.

Jamie Y said...

Yay!!! This is the kind of news I like to hear and I couldn't be more happy for your little princess! It was great seeing you and I'm still planning on Wed.

Jess said...

We are sooo happy to hear about Jersy's progress.

Brittanie said...

Hooray!! I'm so glad things are starting to look up! It was fun talking to you yesterday. That website I was telling you about is:
http://thedaringadventure.com/isaacs-story/
Anyway - love ya!

Heather said...

I am so glad to hear that! I pray for you and know that soon this will come to an end and you can be home with all three of your little blondies.

The Larson's said...

Hooray for Jersey!!! I am so excited to hear that she is getting stronger and doing better. What GREAT news. We will continue to keep you and your sweet family in our prayers.

Morris Mama said...

Such great news! Yay for her foot! Thanks for the update

Alvin & Jessica Pease said...

Im so happy to hear she is making progress. I hope it continues to go that way. Did the drs give you any idea of how long she will be there? i have an appoitment there Jan 14th & if you guys are still there i would love to come see you, that is if you dont mind. hopefully you guys wont be there though. anyway we did meet with Dr Clevland & he sounded very confident that he could fix our little guys heart. he said the main thing was the hole between the two ventricles & the interupted aortic arch but he wont know the extent of what he will have to do until he actually gets here & they can do tests on him & look at things more closely, but for sure he will be having surgery within the first week of life. oh and yes i am still seeing Dr Ponkey. She is the best...
neway i hope your baby Jersey continues to get better. i think about her everyday & you. please let me know if there is anything i can do for you guys.

Michelle Bair said...

Yeah I'm so glad to hear the good news. Hopefully things just keep progressing from here.

Amanda-The Family News! said...

I am glad to hear Jersey doing better.... Continued prayers - for both Jersey and your 2 other little ones!
Amanda-SC

Cyndi said...

Oh I'm so glad to hear good news!! Let's hope that it continues.

Jen H. said...

Yay we are so happy to hear the good news!!! We hope it continues and she is home and in your arms soon! Let me know if T & T would want to come over and play! The girls and Kinley would love it as would I!

Chelsea said...

so happy to hear good news!

Renae said...

Hooray for the princess! She is a fighter! :) It's a good thing us girls are so strong, right? :)

Scott and Nicole said...

We are so glad to hear of the good progress, you go Jersey. YOUr family is in our thoughts and prayers. THings will be back to normal soon, hang in there Heidi.

Nicole P.

Alisa Larson said...

Heidi that is AWESOME!!! I'm so glad for you guys! We'll keep the prayers coming!

Matt and Stacey said...

I've been reading your postings and met Chris thru Tanner and Avery when they were in the hospital. I've never known exactly what to say, because everything you write hits SO close to home! My daughter, Addie, spent from August to November there at St. Joes. She had 2 surgeries and was on ECMO. Her art line went bad, while on ECMO, and she almost lost her hand. It was a LONG 4 months, but she's a fighter and is doing well now. It is a long road, but the only thing I can really say is that these kids are fighters and they have an amazing spirit! She will get thru all of this and be a happy little girl. We also have a 2 year old and my advice is, as hard as it is, your other kids need you too. It is hard to leave sometimes, I know, but also know that the work load will start once you get home, so take advantage of the wonderful staff there and take some time for the rest of your family. It took me months to actually follow that advice, but I'm so glad I finally did. You have to do whats in your heart, I know, but everytime you leave, she will look SO much better when you return. You will see more progress. Just a little advice. If you need anything, we've been thru a lot and will be glad to help!

Stacey and Addison Tams

The Galvan Family said...

Yea!!! So happy to hear that she is progressing!!! We are praying for you daily- we love you & can't wait until you can bring Jersey home.