Jersey has made "considerable progress" over the last 2 weeks and "good progress" over the last week her surgeon said and we are thrilled!! He said today she was stable, stable!!! she's never been stable before, this is huge. So she's made huge progress, she's stable, AND her doctors are hopeful...a little weight is off our chests. Her nurse said she's one of the miracle babies that proves everybody wrong. I love it!
Having said that we have to take the good and the bad, unfortunately. She has a condition called chlyothorax. I don't really understand it so I won't try to explain it. But what I do know is it causes an excessive amount of drainage out of her left chest tube and she's been switched to a special formula for her feeds rather than breast milk. Her doctors are worried that because she's draining so much her already rotten nutrition is even more compromised. She's plateaued and won't get much better if she isn't fed and she can't be properly nourished until this chylothorax is taken care of. Also, she needs to be put on permanent dialysis for her unfunctioning kidneys so her poor little body will have to endure another surgery with 2 different things on the agenda. Her doctors want to take advantage of her stable condition in hopes of an easier recovery.
Her surgery is a relatively low risk surgery but I'm not sure I can handle a repeat recovery from these last 4 weeks. I'm terrified she'll come back to us looking, acting, responding horribly. It's taken her 4 weeks, 4 weeks to stabilize since her surgery.The doctors still have no answers as to why she did so terribly, what if it happens again? I anticipate taking a step or two back but I'm not prepared for any more than that. I'm amazed at what her little body has already survived and I think it unfair to ask her to do it all over again. What was she thinking when she raised her hand in Heaven and signed up for this? She's a fighter as she has already proven, if she can endure this life of surgeries, sickness, and unknowns surely there is a throne waiting for her.
Tuesday, December 30, 2008
Saturday, December 27, 2008
Jersey Pants
A really long Jersey post.... Oh, just a little warning: further on there are some semi-graphic pictures the faint hearted may not want to view.
This darling tree was given to Jersey by our sweet friend who knows she wants to be girlie with hair bows and bracelets but can't right now. She decided the next best thing would be a pink Christmas tree...she was right! Auntie Brooke bought the perfect hot pink bulbs to adorn the already darling tree. After Jersey got her tree we started to notice other rooms decorating with trees, of course their's weren't half as cute as hers. She's already a trend setter!
Daddy and his girl. He's like a papa bear. Cute and cuddly on the outside but fierce and protective of her on the inside. Watch out!
Here's our most recent picture of Jersey Girl. Her hair is growing back slowly and doesn't look half as silly as it did. If you'll remember it was shaved in a failed attempt to get an iv in weeks ago. The 2 tubes on either side of her chest are draining tubes that drain extra blood and fluid from her heart, a completely normal procedure for heart surgery. And then there's her Frankenstein scar. This was the first time we saw it undressed and it looks awful. Typically a little chest is glued shut but Jersey seems to make everything difficult. Because she was so swollen the surgeon had to pull her chest shut and needed to suture it in order to keep it shut. I was looking forward to her little chest with a zipper to her heart but this won't heal as pretty as I hoped for. I'm trying to look at the positives like: at least she's come far enough it was able to be closed, and they have to open her again to close her sternum so maybe the next time she's closed we'll get a better looking chest, or maybe her chest will look so awful it'll keep her modest and away from bikinis!! It's such a minor worry in the grand scheme of things.
On Christmas morning the surgeon told us they, as in him and all Jersey's doctors, are hopeful. HOPEFUL!! It only took them a whole month to tell us this but it means Jersey if FINALLY getting better! Merry Christmas to us! She's made some big improvements over the last 2 weeks and the doctors are FINALLY optimistic. It's been such a long and difficult road with so many unexpected issues but to hear her surgeon say he's hopeful means the world to us. We cling to every word, good or bad, the doctors say. Every facial feature, every whispered conversation, EVERYTHING is clung to and analyzed by us. It's vicious and no fun but it's life in the hospital.
We had a bit of a scare earlier in the week. My Mother Dearest was taking a shift with Jersey as I caught a wicked cough/cold and wouldn't be around her. I had just talked to Jersey's nurse, whom we love, and everything was going good. Five minutes later I get a text from my mom saying that Jersey's RA line (a line that feeds directly into her heart where medication is given) had accidentally been cut and the room was quickly filling up with doctors. PANIC! I'm 45 minutes away with the blondies and there's NO way I could be there any time soon. I get another text saying there was a big machine being wheeled into her room. My poor mother has no idea what anything is and so I assume the worst. I get anther text saying there's 8 people in the room and 2 units of blood have been ordered and everybody is on their phone calling somebody else. PANIC!! My heart sank, why today when Chris or I can't be there? What machine?? Why extra blood, is she bleeding? What doctors? Is the surgeon on his way? By this time my hands are shaking and I can hardly dial the phone to call Chris. He was at the ASU basketball game and so he was only a few minutes away. Thankfully everything turned out just fine. There were no medications running through the line at the time and there was minimal bleeding, the blood was ordered as a precaution. The RA line was removed and a new line, a broviac line (another long term iv placed in her left thigh) was placed by the surgeon. The machine brought in was an echo machine (a machine that does ultrasounds on her heart) which is done periodically anyway. My poor Mother was traumatized for the rest of the day and rightfully so! Her left leg, the leg the new line is in, looked discolored for a few days which was a HUGE worry for Chris and I. We simply can not have her entire leg turn out like her right foot! It's looking better now and the doctors are watching it closely.
She's lost the majority of her fluid and she continues to lose more everyday. She's looking more like her precious little self. She has been completely weaned off a medication called vasopressin. This medication helps with her blood pressure by constricting her blood vessels to increase her pressure. Basically the vasopressin clamps down on the unimportant things like her kidneys, tummy, extremities, and sends blood to the important things: her heart and brain.When blood vessels constrict, the flow of blood is restricted or decreased which means she can't have anything in her tummy as blood isn't going there. The beauty of her being off that is NOW SHE CAN BEGIN FEEDING!! Today for the first time ever, in all of her 32 days of living she got something in her tummy. She was started on breast milk at 1 cc/hr. Five cc's = 1 tsp so it's a very, very small amount but it's a start and we're excited. We aren't quite sure if she's tolerating it yet, she'll have x-rays done and her belly is being watched for any distension (stomache swelling). She's gotten to the point in her recovery where she won't recover any further unless she is fed. Poor nutrition has played a huge role in her not healing. Her tissues are poor and her scar looks rotten due to her nutrition. She's been on TPN (total parenteral nutrition which has vitamins, salts, and sugars) and lipids (a fat) but there's no replacement for real food. She's had several hurdles to leap before she'd be fed and she's made it so far. She's also coming down off her epinephrine and is completely off neosynephrine, both are medication for her heart. She's been on nitric oxide as well as oxygen and when she was taken completely off the nitric she didn't tolerate it well so she's back on. When she's off the epi she'll be given sildenafil (viagra) to replace the nitric. Sildenafil sounds better than viagra don't you think? The last heart med to go will be dopamine. The very last medication to wean her off of will be her fentanyl, a pain med. She's on such a high dose it'll take quite a while and she'll have to be given methadone and adavan to treat her withdrawls. So, for the record, she's coming off of epinephrine, dopamine is next, followed by the nitric oxide, and lastly fentanyl and adding sildenafil, methadone, and adavan. Sheesh!
Now her foot. The picture on the left is a before and the right is a now. One may not agree but it's looking much better! In many spots it's pinking up except for the tips of her toes. There's still talk about amputation of toes but we can kiss a couple of them good bye if it means she can keep her foot! The nurses have been putting on nitroglycerin paste and have recently switched to silvadene. It has an antimicrobial agent and is typically used on burn victims. If you look closely at her foot you'll see blisters and opened sores. Poor little foot. We're so pleased that it's healing!!
This darling tree was given to Jersey by our sweet friend who knows she wants to be girlie with hair bows and bracelets but can't right now. She decided the next best thing would be a pink Christmas tree...she was right! Auntie Brooke bought the perfect hot pink bulbs to adorn the already darling tree. After Jersey got her tree we started to notice other rooms decorating with trees, of course their's weren't half as cute as hers. She's already a trend setter!Daddy and his girl. He's like a papa bear. Cute and cuddly on the outside but fierce and protective of her on the inside. Watch out!
Here's our most recent picture of Jersey Girl. Her hair is growing back slowly and doesn't look half as silly as it did. If you'll remember it was shaved in a failed attempt to get an iv in weeks ago. The 2 tubes on either side of her chest are draining tubes that drain extra blood and fluid from her heart, a completely normal procedure for heart surgery. And then there's her Frankenstein scar. This was the first time we saw it undressed and it looks awful. Typically a little chest is glued shut but Jersey seems to make everything difficult. Because she was so swollen the surgeon had to pull her chest shut and needed to suture it in order to keep it shut. I was looking forward to her little chest with a zipper to her heart but this won't heal as pretty as I hoped for. I'm trying to look at the positives like: at least she's come far enough it was able to be closed, and they have to open her again to close her sternum so maybe the next time she's closed we'll get a better looking chest, or maybe her chest will look so awful it'll keep her modest and away from bikinis!! It's such a minor worry in the grand scheme of things.
On Christmas morning the surgeon told us they, as in him and all Jersey's doctors, are hopeful. HOPEFUL!! It only took them a whole month to tell us this but it means Jersey if FINALLY getting better! Merry Christmas to us! She's made some big improvements over the last 2 weeks and the doctors are FINALLY optimistic. It's been such a long and difficult road with so many unexpected issues but to hear her surgeon say he's hopeful means the world to us. We cling to every word, good or bad, the doctors say. Every facial feature, every whispered conversation, EVERYTHING is clung to and analyzed by us. It's vicious and no fun but it's life in the hospital.
We had a bit of a scare earlier in the week. My Mother Dearest was taking a shift with Jersey as I caught a wicked cough/cold and wouldn't be around her. I had just talked to Jersey's nurse, whom we love, and everything was going good. Five minutes later I get a text from my mom saying that Jersey's RA line (a line that feeds directly into her heart where medication is given) had accidentally been cut and the room was quickly filling up with doctors. PANIC! I'm 45 minutes away with the blondies and there's NO way I could be there any time soon. I get another text saying there was a big machine being wheeled into her room. My poor mother has no idea what anything is and so I assume the worst. I get anther text saying there's 8 people in the room and 2 units of blood have been ordered and everybody is on their phone calling somebody else. PANIC!! My heart sank, why today when Chris or I can't be there? What machine?? Why extra blood, is she bleeding? What doctors? Is the surgeon on his way? By this time my hands are shaking and I can hardly dial the phone to call Chris. He was at the ASU basketball game and so he was only a few minutes away. Thankfully everything turned out just fine. There were no medications running through the line at the time and there was minimal bleeding, the blood was ordered as a precaution. The RA line was removed and a new line, a broviac line (another long term iv placed in her left thigh) was placed by the surgeon. The machine brought in was an echo machine (a machine that does ultrasounds on her heart) which is done periodically anyway. My poor Mother was traumatized for the rest of the day and rightfully so! Her left leg, the leg the new line is in, looked discolored for a few days which was a HUGE worry for Chris and I. We simply can not have her entire leg turn out like her right foot! It's looking better now and the doctors are watching it closely.
She's lost the majority of her fluid and she continues to lose more everyday. She's looking more like her precious little self. She has been completely weaned off a medication called vasopressin. This medication helps with her blood pressure by constricting her blood vessels to increase her pressure. Basically the vasopressin clamps down on the unimportant things like her kidneys, tummy, extremities, and sends blood to the important things: her heart and brain.When blood vessels constrict, the flow of blood is restricted or decreased which means she can't have anything in her tummy as blood isn't going there. The beauty of her being off that is NOW SHE CAN BEGIN FEEDING!! Today for the first time ever, in all of her 32 days of living she got something in her tummy. She was started on breast milk at 1 cc/hr. Five cc's = 1 tsp so it's a very, very small amount but it's a start and we're excited. We aren't quite sure if she's tolerating it yet, she'll have x-rays done and her belly is being watched for any distension (stomache swelling). She's gotten to the point in her recovery where she won't recover any further unless she is fed. Poor nutrition has played a huge role in her not healing. Her tissues are poor and her scar looks rotten due to her nutrition. She's been on TPN (total parenteral nutrition which has vitamins, salts, and sugars) and lipids (a fat) but there's no replacement for real food. She's had several hurdles to leap before she'd be fed and she's made it so far. She's also coming down off her epinephrine and is completely off neosynephrine, both are medication for her heart. She's been on nitric oxide as well as oxygen and when she was taken completely off the nitric she didn't tolerate it well so she's back on. When she's off the epi she'll be given sildenafil (viagra) to replace the nitric. Sildenafil sounds better than viagra don't you think? The last heart med to go will be dopamine. The very last medication to wean her off of will be her fentanyl, a pain med. She's on such a high dose it'll take quite a while and she'll have to be given methadone and adavan to treat her withdrawls. So, for the record, she's coming off of epinephrine, dopamine is next, followed by the nitric oxide, and lastly fentanyl and adding sildenafil, methadone, and adavan. Sheesh!
While she's doing so good in so many areas her kidneys still aren't functioning. Over the last several days she's produced no urine until today, in the last 22 hours she's had 3cc's, a healthy baby will have 75 in a 24 hr. period. She had a renal ultrasound done and we're still waiting for the results. The specialist thinks they may still be living but we won't know until her ultrasound is read. Now that she's off the vasopressin we're hoping to see a better urine out put. The specialist is talking about permanent kidney dialysis and possibly a kidney transplant. If there's no improvement in her urine output he wants to do surgery next week to place a permanent catheter for dialysis. WE NEED HER KIDNEYS! The doctor emphasized how sick she will be with both her heart disease and kidney disease. Pray she pees!!
Now her foot. The picture on the left is a before and the right is a now. One may not agree but it's looking much better! In many spots it's pinking up except for the tips of her toes. There's still talk about amputation of toes but we can kiss a couple of them good bye if it means she can keep her foot! The nurses have been putting on nitroglycerin paste and have recently switched to silvadene. It has an antimicrobial agent and is typically used on burn victims. If you look closely at her foot you'll see blisters and opened sores. Poor little foot. We're so pleased that it's healing!!
Friday, December 26, 2008
Christmas Day 2008
This has been such a different Christmas Season for our family. The focus was removed from gifts, shopping, and parties and geared more towards family and priorities. How easy it is to get wrapped up in the material matters of Christmas. I hope every year we can look back to our trials of these last few months and put what's really important into perspective. That we can remain humble and help other families the way we have so many times been helped.
Santa didn't over look Tatum and Tucker this year, he managed to pull through and bring a few loved presents. Their fun gifts this year were "two wheel bikes with no training wheels". They were both thrilled to try them out but unfortunately it rained ALL day!
Tuck got this "motorcycle" helmet that he thinks is the best thing ever. Tater got this cd player she has constantly played. She loves music and she loves to dance to it even more. She got some cd's of her very own and she thinks she's big stuff!
After playing with all their new, fun things we were off to the hospital to visit our sweetie. Tatum and Tucker showed her what Santa brought her, they didn't seem to notice she was asleep the entire time! Tatum is holding sandals and Tuck is holding passies.
After playing Santa with Jersey the blondies found better things to occupy their time. They played on this bed until we left being way to noisy and much to active. They were having so much fun Chris and I got some good time in with the Little Miss.
Every family has to get a Christmas family picture, here's ours.
ALL the girls. The boys.
Tuck getting ready to attempt his first bike ride. It's serious business and he's ready.
Santa didn't over look Tatum and Tucker this year, he managed to pull through and bring a few loved presents. Their fun gifts this year were "two wheel bikes with no training wheels". They were both thrilled to try them out but unfortunately it rained ALL day!
Tuck got this "motorcycle" helmet that he thinks is the best thing ever. Tater got this cd player she has constantly played. She loves music and she loves to dance to it even more. She got some cd's of her very own and she thinks she's big stuff!
They both got these funny swords, we really shouldn't encourage fighting!
After playing with all their new, fun things we were off to the hospital to visit our sweetie. Tatum and Tucker showed her what Santa brought her, they didn't seem to notice she was asleep the entire time! Tatum is holding sandals and Tuck is holding passies.
Jersey couldn't wait to try on her new sandals and she's bummed they won't fit for quite a while.
After playing Santa with Jersey the blondies found better things to occupy their time. They played on this bed until we left being way to noisy and much to active. They were having so much fun Chris and I got some good time in with the Little Miss.
Every family has to get a Christmas family picture, here's ours.
ALL the girls. The boys.
Tuck getting ready to attempt his first bike ride. It's serious business and he's ready.
Well Tucker is an amazing bike rider. He picked it up his very first try. He turns well, dismounts well, and he can even go on and off the side walk. His only trouble is getting started, he's a bit too short. It's funny watching the dismount, he swings a leg over the seat and gently lands on the grass. CUTE! Tatum, on the other hand, has had a difficult time learning. Mostly because of her bike, it's heavy and the style of it doesn't make it a great bike to learn on.
We had such a fun, busy day. It was so nice to be together, just the four of us on Christmas morning. It's rare these days when it's just us four and on a special day such as Christmas where no whining or impatients or selfishness is allowed it makes me SO grateful for what I have. After a full day of Santa, the hospital, both grandparents, cousins, and bikes the blondies were more than ready for bed. They simply HAD to sleep with a favorite present, Tatum with Bubblegum the baby horse and Tucker with his "motorcycle" helmet and his Ironman. Chris and I ended the long day with his new movie The Dark Knight. It was a great day...I can't wait for next year when all 5 of us can enjoy each other and laugh together!
We had such a fun, busy day. It was so nice to be together, just the four of us on Christmas morning. It's rare these days when it's just us four and on a special day such as Christmas where no whining or impatients or selfishness is allowed it makes me SO grateful for what I have. After a full day of Santa, the hospital, both grandparents, cousins, and bikes the blondies were more than ready for bed. They simply HAD to sleep with a favorite present, Tatum with Bubblegum the baby horse and Tucker with his "motorcycle" helmet and his Ironman. Chris and I ended the long day with his new movie The Dark Knight. It was a great day...I can't wait for next year when all 5 of us can enjoy each other and laugh together!
Monday, December 22, 2008
The Incredible Shrinking Baby
Jersey Girl is pulling through! Most importantly, she's lost the majority of her fluid. Yesterday alone she lost half a liter, that's 1.1 pints or 2.1 cups or 16.9 ounces, that's huge for her! Second very important item is she was able to have her chest closed on Saturday, her skin is closed but her sternum is still opened. The surgeon said she'll heal quicker when her skin is closed and her risk for infection is greatly reduced. We're still waiting for additional fluid to be lost before her sternum is closed but the doctors don't seem to be in any hurry. She's also being taken off her nitrous oxide (NO2). The reason she was on it is because it relaxes her bronchial muscles, which are constricted, allowing her to be better oxygenated. The doctors are also slowly weening her off some of her heart meds, the neosynepherine and epinephrine. Her blood pressure is SO much better, up from 30s/20s to 60s/30s, that's really good for her. While we want her to heal lightening fast we'll take the slow and steady, something is better than nothing.
She's finally looking presentable enough to bring Tatum and Tucker to the hospital for a visit. Tuck likes looking at her for about 2 seconds and then moves on to better things, like cookies. Chris asked if he'd like to be held up again to see Jersey and he responded, "No, I don't want to look at that." Some day he'll understand. Tatum on the other hand doesn't seem to see any of "that". She is thrilled just to touch her leg and rub her head. She loves to stare and sing to her. It's funny the difference. Is it the age difference? Boy vs. Girl? Personality? Perhaps all of the above.
Here's the Little Miss, and no she's not awake, she likes to keep her eyes open while she snoozes. While visiting her yesterday she was very awake, I've never seen her so awake and so active. Poor thing. She was given Adavan to knock her out again. Today she was on a constant drip of it to keep her asleep. Who would want to be awake during this, NOT ME! She is looking SO good! Her ears are better, we can almost fit a head band, and she can actually straighten a leg...well almost. And amazingly, her sweet foot and toes are looking better. They still look dreadful but they are pinking up in several areas. Looks like she'll still be able to twirl!
You know, it's funny what they say, but we can actually feel the prayers of the so many people who pray for our sweet Jersey. I admit, I've been quite the judger, when people would say they could feel prayers I kind of smiled to myself thinking "yeah, sure", but it's true. In so many ways we have been and are being humbled. It's very over whelming the love, sacrifice, and support others have given and shown us, and some we don't even know. From scrubbing our nasty showers to giving us money so many people have been amazing examples of love to us. When we've been too tired and heart broken to function we've felt nothing but love and encouragement. Our families have absolutely saved us and our ward is simply the best. How do you even begin to say thank you when thank you just isn't enough?
She's finally looking presentable enough to bring Tatum and Tucker to the hospital for a visit. Tuck likes looking at her for about 2 seconds and then moves on to better things, like cookies. Chris asked if he'd like to be held up again to see Jersey and he responded, "No, I don't want to look at that." Some day he'll understand. Tatum on the other hand doesn't seem to see any of "that". She is thrilled just to touch her leg and rub her head. She loves to stare and sing to her. It's funny the difference. Is it the age difference? Boy vs. Girl? Personality? Perhaps all of the above.
Here's the Little Miss, and no she's not awake, she likes to keep her eyes open while she snoozes. While visiting her yesterday she was very awake, I've never seen her so awake and so active. Poor thing. She was given Adavan to knock her out again. Today she was on a constant drip of it to keep her asleep. Who would want to be awake during this, NOT ME! She is looking SO good! Her ears are better, we can almost fit a head band, and she can actually straighten a leg...well almost. And amazingly, her sweet foot and toes are looking better. They still look dreadful but they are pinking up in several areas. Looks like she'll still be able to twirl!You know, it's funny what they say, but we can actually feel the prayers of the so many people who pray for our sweet Jersey. I admit, I've been quite the judger, when people would say they could feel prayers I kind of smiled to myself thinking "yeah, sure", but it's true. In so many ways we have been and are being humbled. It's very over whelming the love, sacrifice, and support others have given and shown us, and some we don't even know. From scrubbing our nasty showers to giving us money so many people have been amazing examples of love to us. When we've been too tired and heart broken to function we've felt nothing but love and encouragement. Our families have absolutely saved us and our ward is simply the best. How do you even begin to say thank you when thank you just isn't enough?
Thursday, December 18, 2008
On the Home Front
Here's our tree this year, a cute 4 ft. entry tree on one of our side tables covered with a Christmas blanket. Usually we go buy a real tree all together and then I spend way to long putting on the lights and rearranging the ornaments. This year I don't have the time or energy so we made do with what we had. Tucker insisted on wearing his undies, I'm picking my fights!
I walked into my bedroom the other day to find this, the blondies pumping. It was only fair they both get a turn! They thought they were pretty funny, so did I!
Wednesday, December 17, 2008
P is for Progress, and More of It!
She's had several good days in a row so thankfully there's not much to report. The doctors are continuing to pull off fluid and by this weekend she should have her chest closed...hopefully!!! She's finally beginning to look like her tiny self again! Her lungs are looking and sounding better while her kidneys are taking their sweet time coming back. She is having further genetic testing done as her looks are raising a few questions. Not because I'm biased, but I think she looks normal. If there is a syndrome or any missing genetic information it may explain why she's had such difficulty responding and recovering from treatment. Cross your fingers she's "normal"!! We are SO blessed to have her. I have learned things from this experience I wouldn't learn otherwise. Life is precious and fragile and there's so much we take for granted. Jersey Girl has opened our eyes to the small and big things, the important and the unimportant.
Monday, December 15, 2008
Yeah for Progress!
Over the last few days Jersey has done nothing but progress!! It feels SO good to say that! Her main goal over the last week has been to loose fluid and finally she's responding to treatment. Her tiny 5 pound body has lost about a liter and a half of fluid and she still has about another half a liter to go! Once she has lost the remaining half liter the surgeon will be able to close her chest which will help her heal a little quicker. Having an opened wound is hard work on a little princess! As for her tootsies the surgeon suspects she'll recover but not without battle wounds. She'll blister and scar and loose some plumpness at the tip of her toes but we can handle that! Only time will tell though. She's been re-started on a medication called Lasiks to help jump start her kidneys that are very slowly coming back. HOORAY! Her heart has been pretty strong and consistent over the last week but has started a weird rhythm so the doctors are keeping their eyes on it. Over all she's doing pretty well, how relieving it is to finally be getting good news!
On the home front Tatum and Tucker have become quite the hand full. They are wired and naughty when usually they are darling and obedient. I know it's because they need our love and attention but it's quite hard to remember that in the middle of the third major meltdown. When Chris and I are exhausted physically and emotionally we want to come home and be with our "normal" blondies who aren't their normal darling selves. Instead of a fun evening together it usually ends with tears and fits. We constantly remind ourselves "this is only temporary" and while we understand that T&T don't. We'll recover, they'll recover but it's SO difficult while we're in the thick of it. We love them dearly and want to be/do everything for/with them. All in good time. How much we'll appreciate being a normal family some day!
On the home front Tatum and Tucker have become quite the hand full. They are wired and naughty when usually they are darling and obedient. I know it's because they need our love and attention but it's quite hard to remember that in the middle of the third major meltdown. When Chris and I are exhausted physically and emotionally we want to come home and be with our "normal" blondies who aren't their normal darling selves. Instead of a fun evening together it usually ends with tears and fits. We constantly remind ourselves "this is only temporary" and while we understand that T&T don't. We'll recover, they'll recover but it's SO difficult while we're in the thick of it. We love them dearly and want to be/do everything for/with them. All in good time. How much we'll appreciate being a normal family some day!
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